This is a $2.8M a dose drug for a rare genetic disease. 7 kids now have reported tumors. That’s not the story. They story is:
The cases, which for the moment are being seen as only a potential safety signal, were publicized on Thursday by an advocacy group and on a Facebook page after Novartis earlier this week disclosed the information to neurologists.
Where was the FDA, that agency actually responsible for drug safety? A FACEBOOK PAGE? SERIOUSLY?
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Where was the FDA?
Busy investigating the link between Tylenol and autism?
Elect a clown, expect three rings full of dead children.

